Date

12-19-2024

Department

School of Behavioral Sciences

Degree

Doctor of Education in Community Care and Counseling (EdD)

Chair

Dr. Frederick Volk

Keywords

phenomenology, genito-pelvic pain, women's health

Disciplines

Counseling

Abstract

This study explored the lived experiences of women seeking treatment for genito-pelvic pain, aiming to identify how each person experiences barriers and facilitators toward obtaining treatment as well as their outlook on the future regarding treatment. The research sought to provide an understanding of their experiences, with implications for minimizing current barriers and building accessibility and awareness. A qualitative phenomenological design was utilized to obtain the data from participants through semi-structured individual interviews. Nine individual interviews were completed with women between the ages of 27 and 44-years-old who have experienced symptoms of genito-pelvic pain for at least 1 year and who have sought treatment at least once in that time. The data were analyzed using thematic analysis to identify reoccurring themes. The findings revealed three key themes, including validation/invalidation and trust/distrust, advocacy and education/competency, and accessibility. Participants described the experience of feeling invalidated by medical providers when seeking treatment for genito-pelvic pain that influenced their level of trust with the providers and medical system as a whole. Many participants also reported the lack of accessibility to competent providers, education, and treatment. The findings emphasize the need for patient-centered care and collaboration models that address all dimensions of genito-pelvic pain. The insights gained from this study can further inform clinical practice, approaches, and training development to improve patient experiences and treatment outcomes for women experiencing genito-pelvic pain.

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